Congenital Heart Day, February 24, 2012

It's official!!!

February 24, 2012 is officially Congenital Heart Day at the Colorado Capitol!!!

I'm not a fan of "copy and paste" on a blog, so I apologize for doing that here.  I received an email from a fellow CHD friend, Amanda Rose Adams, urging all of us affected by CHDs to make a large presence at the Colorado State Capitol on Friday, February 24, 2012.

Here is an excerpt of the email:

GREAT NEWS!!! We have a resolution at the Colorado Legislature.  Both the Senate and the House will vote on a resolution that will recognize congenital heart defects as a unique and urgent condition and celebrate Friday, February 24 as Colorado Congenital Heart Day!!!!! This was the compromise we reached with several stakeholders in lieu of a long term study necessary to adopt pulse ox screenings at our abnormal altitude.  The resolution calls for the study and a commitment from the Colorado Board of Health to make Congenital Heart Defects a health priority in our state.

I am so proud that Representative Fischer and Senator Boyd have supported and championed this work.  PLEASE, PLEASE, PLEASE share this message with all CHD families and adults here in Colorado or who are treated by Colorado doctors.  We need AS MANY families and adults as we can to come to the Capitol and be present, be counted, and represent the 50,000 Coloradoans impacted by CHD.  I'm making a Facebook page (you don't need facebook to see it) to post information about the gathering, but for now, please share this message ASAP - we need to prove that all CHD survivors and the lost still count.  We only have 9 days but we must be counted.  This silent disease will silence us no more!

http://www.facebook.com/pages/CHD-Counts-at-the-Colorado-Capitol/325136717522559?sk=wall  

Please come join us at the capitol on Friday, February 24, 2012.  If you are from southern Colorado and would like to be a part of the Mended Little Hearts of Colorado Springs group, please contact us at 719-235-3769.  You can find us on Facebook at "Mended Little Hearts - Colorado Springs" or check out our website at www. mendedlittleheartsofcoloradosprings.org.


Let's show Colorado how many people are affected by CHDs and flood the capitol on Congenital Heart Day!!!